Join this webinar to hear from two non-industry perspectives – patient advocacy and research – on how data sharing can be best harnessed for clinical and research use.
Jan Mumford joined the InGeNA working group to provide the patient perspective. She will talk about patient understanding of data, the challenges in having patient data available consistently across all points of care and clinician attitudes towards data sharing. Dr Natalie Thorne will then present Melbourne Genomics’ research findings on attitudes towards data sharing. She will also give her thoughts on integrating medical information with pure genomics and what the industry can do to earn patient trust and promote productive use of genomic data.
Plus, get an update and an opportunity to comment on the InGeNA “Data and technology innovation” project stream.
Speaker presentations will be followed by audience Q&A.
Wednesday, June 16, 2021 @ 1:00pm AEST